Wednesday, August 24, 2011
Tuesday, August 23, 2011
Last night was reading around over here and one of the projects this blog is doing is earning money for disabled people in poor countries who cannot even afford a basic wheelchair. One lady wrote about how thankful she was for her disabled daughter to have all of the opportunities for care, therapy, and having any/all medical treatments available here in America. I started thinking how blessed I am, even with all of my and my husband's health challenges at such a young age, to have access to many medical treatments that so many others do not have. Sometimes it takes months, years, to find a treatment or a medicine that works without having too many negative side effects, but we are blessed to be able to try them! I cringe when I look at the possible side effects of certain medicines I'm on, but I also know that without them I would not be sitting here on my couch.
When I think about how there are so many disabled people who do not even have access to a simple wheelchair and end up begging on the streets for money and food, unable to go anywhere unless someone carries them, my heart aches. I am so blessed to live in America. I admit that when I think of living in the U.S. and healthcare, I do not usually come up with the word "blessed". But you know what? It's true! I am blessed to have the health care that I have, even if I regularly pull my hair out over the expenses of it and the way that the insurance companies operate. I am blessed that my health insurance covers thousands of dollars worth of medicine & treatments that weren't even around 10 years ago! It is just a crazy thought.
So, to wrap it up, these were just my random thoughts for today. If you would like to learn about the Free Wheelchair Mission, visit this link. The blog itself (Life Rearranged) was really encouraging to find, because it focuses on having a place where people can come and share their stories of caring for someone with, or having Special Needs. Although I don't really fit into this category, it was inspiring to read a lot of these women's stories about everything they've gone through and how they still have hope through the darkest times in their lives.
If any of you have chronic health conditions, or children with special needs, I really recommend this blog. I do believe that God is good and faithful even through the hardest times in our lives. I believe He hears our prayers and answers them with His perfect timing, and I believe that the hardest things we go through can be the times that we can grow the most in our faith, our hope, and our perseverance.
I do apologize if I was rambling on and on as I am really tired and need to go to bed! I realize this was a rather un-entertaining post, but sometimes I just need to write about what's going on in my mind. I will try to incorporate more pictures and interesting stuff next time I post! :-)
Saturday, August 20, 2011
Well this is embarrassing... but I've been having sleeping issues... I got up at 1:24 p.m. Yes. But I couldn't go to sleep until around 7 a.m, so I'm still really tired.
2. How do you like your steak?
I don't eat steak. In fact, I've never even had a bite of steak. Not joking! I was raised eating vegetarian and certain meats just don't appeal to me, probably since I wasn't raised with them. My closest thing to steak would be eating an In 'N Out Burger, which I had for the first time a few years ago!
3. What was the last film you saw at the cinema:
reminded me just now, lol)
4. What is your favourite TV show?
5. If you could live anywhere in the world where would it be?
Probably here, because I wouldn't want to be away from my family & friends. But, if we all moved to San Diego or Hawaii, I don't think I'd be upset! :-)
6. What did you have for breakfast?
7. What is your favorite food?
I love most italian stuff like eggplant parmesan, fettuccini alfredo, pizza, and peach cobbler a la mode, and so many things... I can't choose one. This seems to be a recurring theme in my survey. I can't ever choose just one thing!
8. Foods you dislike?
Raw onions, bell peppers, all seafood
9. Favorite place to eat?
Broadway Heights, Old Spaghetti Factory, Olive Garden, P.F. Chang's, Crush
10. Favorite dressing?
11. What kind of vehicle do you drive?
'02 Toyota Camry. So smooth & comfy to ride in (usually my hubby drives when we go somewhere, I don't get out as often with my health these days)
12. What are your favorite clothes?
13. Where would you visit if you had the chance?
An amazing tropical island like St. Thomas, also Hawaii, and Italy
14. Cup 1/2 empty or 1/2 full?
I think it's funny when people say "overflowing!!!" so I'll say, "overflowing!!!"
15. Where would you want to retire?
Wherever my family & friends are, but I wouldn't mind having some amazing scenery around too!
16. Favorite time of day?
Anytime besides waking up in the morning. ;-)
17. Where were you born?
Angwin, CA (Napa Valley area)
18. What is your favorite sport to watch?
None! Well, only the superbowl because I try to find out about the players and that makes it more interesting. Oh, and maybe some gymnastics once in awhile.
19. What is your favorite fragrance?
It's kinda weird, but I love the smell of the plasticy blow-up rafts and toys in the summer, and the smell of my cats, and freshly washed sheets! lol
20. What is your favorite face cream?
I just realized that I answered this earlier as my favorite "ice cream" and then question #35 was that, so I went back here and had to change it! haha, I just use Cetaphil face wash and face lotion, works for me.
21. Favorite baby/kids products?
Don't know, I don't have kids yet.
22. People watcher?
23. Are you a morning or night person?
Afternoon & Night.
24. Do you have any pets?
Yep, my two kids (kitties) Leila and Louie.
25. Any new and exciting news you'd like to share?
I'm able to eat a lot more regular foods now, after 7 days of mostly liquids!
26. What did you want to be when you were little?
An astronaut, piano player, or a nurse.
27. What is your favorite memory?
Our wedding day and honeymoon week. best.time.ever!
28. Are you a cat or dog person?
Both. But cats are easier and dogs need daily walks and a yard, so we only have cats right now.
29. Are you married?
30. Always wear your seat belt?
31. Been in a car accident?
Ugh I don't like to talk about that kinda stuff... I feel like I'll jinx myself or something... but I just trust in God to keep us safe every day and keep crazy distracted people off the roads!
32. Any pet peeves?
When people chew REALLY loud at the movie theater (or anywhere really...), drivers who cut you off just to get one car ahead
33. Favorite pizza toppings?
34. Favorite flower?
They're all so pretty, and the good smelling ones are the best. Roses and star lillies come to mind right now.
35. Favorite ice cream?
Right now, vanilla soft serve, and that last bite w/ the plain cone and the ice cream, SO GOOD!
36. Favorite fast food restaurant?
Ehhhh Subway I guess, or Chipotle... can't eat a lot of fast food stuff... grease hurts me, and I can't have lettuce, tomato, etc so I have to be creative.
37. How many times did you fail your driver's test?
38. From whom did you get your last email?
I actually just got a reply e-mail from a blog friend, Hannah, how nice!
39. Which store would you choose to max out your credit card?
Geez I haven't been out enough lately... how about Target!
40. Do anything spontaneous lately?
Went outside and walked around for the first time in a week... it sucks to be sick!
41. Like your job?
Fighting this wretched disease is my job at this point. And I'm not very fond of it!
Can't have it now. Sad. I used to looooooove steamed broccoli w/ mayonnaise... I know, sounds weird... but it's goooooood! I miss it! :-/
43. What was your favorite vacation?
Honeymoon in Santa Cruz & San Diego!
44. Last person you went out to dinner with?
45. What are you listening to right now?
My hubs just turned to this old BeeGee's concert on tv, reminds me of when Jimmy Fallen and Justin Timberlake do that funny skit, have you seen it?
46. What is your favorite color?
I love teal blue and deep purple right now.
47. How many tattoos do you have?
48. Coffee drinker?
Thursday, August 18, 2011
Well, I didn't end up having to go the hospital! I endured some of the most painful times of my life, and I've had a lot of them, bought I fought, and people prayed, and I went onto a liquid diet to help control the crohn's flare up. Right now I haven't really eaten since Saturday, except a couple of bites of Top Ramen and some Saltines, and even they don't do that well with my gut. I started the most evil medicine in the world (but the ONLY one that will help me), Prednisone, and I think it's finally starting to help. But the side effects, just to list a few, make it harder to sleep, cause anxiety & depression, can make me jittery, moody, cause weight gain, increase appetite, and cause a thing called "moonface" where your face swells up and makes it look like, well, a moon I guess... and these are only short-term side effects. But I am praying that I will get better on this low dose of Prednisone and then be able to taper off of it fairly quickly and not get all of those nasty side effects, including long-term ones like adrenal gland suppression, liver failure, etc... honestly, I am on a lot of meds that have terrible side-effects and I just have to trust God and know that it's better to be on these drugs than to be dying in a hospital room. God is in control of my life, and worrying will not add any days or minutes to mine.
I think I will end my post with a random list of things I'm feeling/doing/experiencing/wanting:
- I'm hungry, but the hunger gets less each day, because I think my stomach is getting used to liquids only and consuming less calories (I'm guessing maybe 1200-1400 a day).
- I was sooo happy to be able to eat some Ramen tonight, but a little scared that it'll cause more pain the further down it goes in my intestines.
- I have lost 10 pounds since Saturday, and that is about the only positive thing that has come from this flare-up.
- I don't even know if most people hear the term "flare-up" very often; it just means my crohn's disease (inflammatory bowel disease) is in its active stages and needs to be controlled.
- I missed my hubby a lot today when he went to work and came home late. Although I want him to be healthy and go to work, I have to admit I love having him home when I'm sick.
- Speaking of sick, I am getting sick of Ensure drinks, which are my only source of nutrition right now besides V8 Splash juice and the occasional saltine/spoon of Ramen.
- I really hope to be able to eat something new tomorrow, anything besides the things mentioned above.
- If anyone has any questions about what Crohn's Disease is, or how it affects me, I'd be happy to answer!
- I am SO thankful for my family, friends, church, etc. who are all continually praying for me.
- Playing with my kitties and focusing on anything besides myself helps me keep my sanity during the day.
I think I'll end here and go relax, read some blogs, watch tv, check my facebook, etc. Right now I have a feeling that things might be turning around for the good, and I hope that feeling stays. I know that God has never left my side, and even through the toughest times, He is watching over me and I am so blessed to have an amazing husband who stands by me through all of it with the most loving, compassionate heart. I didn't have crohn's before we were married, so I think God put us together to help us through these tough times in our lives (although sometimes I think he's a better caretaker than I am with him!)
Have a good rest of the week!
P.S. - I love this song and just remembered how encouraging the lyrics are, so I posted it here, but realized I can't listed to it right now or I will cry! Too many emotions over here!
Friday, August 12, 2011
My pain has gone down a tiny bit but it usually waxes & wanes, and when it gets bad, it's the worst pain I've ever felt all over my intestines. Like burning fire. And none of my pain meds help. I'm trying to be hopeful and I do trust in God, but I need lots of prayer and support right now.
Thank you all!
P.S. - unfortunately the hospital that I'll most likely be going to does not have internet access available to the patients (sooooo lame) but hopefully I'll be back on here soon.
Thursday, August 4, 2011
Enough about my bum. I refuse to give it anymore attention tonight. I just need prayer that I can sleep better, at better times, and have more energy. A LOT more energy. Cuz right now I have about a 0.5 on a scale of 1-10! And I need to at least get up and do my chores! I need to exercise to maintain/lose the weight I've gained from my medicines and the side effects from them. Side note-We have been going on beautiful walks around the bike path right by our house that follows the creek, so next time we walk, I will bring my camera and maybe post some pictures!